Yesterday I went to the hospital where my treatment is taking place. There I attended a head and neck cancer patient group. This has never been done before. It came about because when I had one of my stays in the hospital I helped another lady who was very distressed after her reconstruction operation and the hospital realised that there was a gap in the services that they offered.
There were around seven of us all with sarcoma but different types plus a few support partners. During the course of the afternoon which was very emotional for some we discovered that although we had different types of sarcoma’s there were also similarities between us and our treatment.
There were some amazing stories of different journeys some finished and some like mine still ongoing.
I also found out about an organization called changing faces which I will blog more about when I’ve looked into it in more detail.
I wish to thank you all for sharing your journeys with me and listening to mine. Thanks also go to the McMillan support centre for hosting the meeting and listening to our views on how future patients maybe helped and supported,
Head and neck cancer is such a difficult journey as everything is out there for others to see, we have all had our dark periods and come out the other side. Now we have to learn how to live life after the cancer and move on to a new stage in our lives.
Hoping to hear from you all in the future.